Hemophilia Foundation in Nigeria and Hemophilia Treatment Centre say
they have jointly engaged 167 primary healthcare heads in Nasarawa State on management of hemophilia.
Dr Christiana Udoh, the Consultant Hematologist, National Hospital Abuja and North Central Director, Hemophilia Treatment Centre, made this known in Abuja on Monday.
She defined hemophilia as a medical condition which reduces the ability of the blood to clot, severely causing the sufferer to bleed excessively from even a slight injury.
She said both organisations urged health officials to create awareness about the condition, especially in rural areas.
Udoh said both organisations carried out rigorous training as part of advocacy on bleeding disorder, saying “we would extend the training to other health workers in rural areas of Nasarawa State. We had to train 167 primary healthcare heads in Lafia, to teach them about hemophilia so that they could also step down the training to their health workers in rural areas. This would create awareness in rural areas because most people do not even know it exist.”
According to her, the training has yielded positive results, as more people suffering from various types of bleeding disorder have been recently discovered in the rural areas.
“We have been reaching out to rural areas and places where circumcision is done and traditional birth attendants take deliveries in which patients suffering from hemophilia might just bleed to death,” she added.
She explained that the centre, in collaboration with the foundation had also carried out an outreach in Kogi state, adding that similar action would soon be carried out in other north central states.
“We are trying to locate the six states in north central and then reach out to them. In the South, we are doing the same in the East and North East as we try to cover the six geo-political zones in the country.’’
She said there are 18 treatment centres in federal teaching hospitals nationwide, with over 420 people currently living with hemophilia in its registry.
“Hemophilia is a rare disease, and in our registry in the hemophilia foundation, we have discovered 420 people that are currently living with the condition in the country.”
She urged government to assist the centre and the foundation to enable them to diagnose and treat the disease.