The Kebbi State Sickle Cell Association (KESCA) has presented a draft bill tagged “Kebbi Sickle Cell Law” to the state House of Assembly.
The bill which is aimed at curbing sickle cell disorder in the state was presented to the Speaker of the House, Alhaji Abdulmumin Kamba, on Friday in Birnin Kebbi by the State Coordinator and Founder of KESCA ,Hajiya Hadiza Shantali.
While presenting the bill, Shantali said the proposed law was necessary because of the financial, economic and emotional trauma parents and patients of sickle cell undergo.
According to her, individuals with sickle cell disorder also go through lot of pains and constant hospitalisation from the time it manifests from six months to the end of their lifetime.
“They go through constant hospitalisation, and are always in need of blood because of the anemia. In this regard, we are happy to inform you that KESCA is collaborating with 21 NGOs ,CSOs and CBOs soliciting for your immense support and that of the entire members of Kebbi State House of Assembly to consider this bill into law,” she pleaded.
The coordinator expressed optimism that if the law was implemented, it would assist individuals living with sickle cell disorder to get proper care and attention during crises and emergencies at hospitals.
“If implemented, it will stop sickle cell cycle in Kebbi state; if genetic counselling is made into law, new unborn babies will be free from inheritance of sickle cell genes,” she said.
Responding, Kamba commended the group for collaborating to present the bill to the state legislature and promised that the house would work to the bill.